My Journey With:

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar I Rapid Cycling With Psychosis ~ Migraines ~ Obsessive Compulsive Disorder (My OCD is currently in remission except for hoarding) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Monday, December 27, 2010

2010 in Review


"For last year's words belong to last year's language and next year's words await another voice." ~T.S. Eliot 




Winter 2010 January 01 - March 19
This past winter something wonderful happened.  We had a new addition to our family, our tortie girl, Niki.  She has brightened our lives and showered us with her love.  I also started college.  I was pursuing a Masters in Sociology with a Graduate Certificate in Women's Studies.  I really wish I could have finished, but I couldn't.  My last day of class I had a bad seizure and the asshole paramedics took me to the hospital.  I told them over and over I didn't want to go but they insisted.  I was so confused that they later told me I answered that the date was 1997 and that Bill Clinton was President.  At least I answered the correct President for the year.  By February I was already withdrawn from school.  Quitting college created a personal disappointment in myself.  During this time I was also struggling religiously.  I left the Roman Catholic Church.  I was scared an excited at the same time.  I was also getting used to my EDS diagnosis.  I made regular YouTube videos on my personal journey with EDS and fibromyalgia.  I joined Facebook and met some awesome other EDSers.  I stared to blog again after a blogging hiatus.  I joined Twitter and soon became a Twitterholic.  I became increasingly mobility impaired and by this time had to ride a scooter around big stores, like Wal-Mart.  I continued to write to my pen pals, whom I really love.  I didn't have enough money to send my Christmas cards out until February, but I didn't want my time and money to go to waste, so I sent them anyway.  I threw up for the first time in years, which may not sound like a big deal, but it was to me.  It seems weird that I can't do something that comes easy to someone else.  It's hard to explain to someone who has normal capabilities.  For a short while my double vision came back and I had to carry eye patches with me at all times.

Spring 2010 March 20 - June 20
Spring was a happy time, which we really needed, because Summer would turn out to be stressful.  I because increasingly disabled by pain and my mobility issues continued to worsen.  I began to study different religions. I started with Islam and Wicca.  When I started the Qur'an I thought it beautiful.  Then I got a few pages into it.  I no longer think it is beautiful.  I will go into this more in my religion blog, The Disillusioned Agnostic, I started to branch out my studies to general Paganism.  I started some seeds to start a garden but didn't get to finish for lack of patience and for loads of pain.


Summer 2010 June 21 - September 21
The summer was horrible, horrible, horrible.  Two adults, Tiffany and Derek, and Tiffany's son, squatted in our house all summer.  We eventually had to pay them to leave.  There is a law in this county that if someone stays in your home for 24 hours they have squatters rights.  That is a stupid law.  The police threatened us that if we so much as put their stuff on the lawn we would both be arrested.  I was freaking out.  If you tell a rape victim that you will arrest her for putting someone's stuff on the lawn because they are squatting in your house the policeman might as well have said "If you so much as put their stuff on the lawn you will be raped in jail and if we're lucky we can get you raped in prison!"  Police have absolutely NO respect for law abiding citizens and/or rape victims.  Don't believe Law & Order: SVU, the police don't give a flying fuck about rape victims, or any victims, for that matter.  I want that to make that clear.  I have another point I want to make clear in the next section describing autumn.  My religious journey came to a stand still as I was too upset to meditate or think deeply on anything.

Autumn 2010 September 22 - December 20
This autumn my DH's mom when into the hospital and they didn't know if she would make it.  She did make it and now is getting better every day in a nursing home.  She wants to come home soon, but she doesn't have a home to come home to.  Two of Jim's brothers and one of his sister-in-law's were here for over a month until one of my BILs left three days before Christmas with no warning.  My DH was very worried about his little brother.  We were all worried sick about him.  During the four days we stayed with my MIL in the hospital I realized that my experiences were not unusual.  Doctors, as a rule, do not care about their patients.  I'm sure some do, but most don't.  While you lie awake in bed at night crying in pain they sure as hell aren't thinking of you.  This question is reserved for most of the doctors I have met in my lifetime.  How can you stand to look yourself in the mirror?

Winter 2010 December 21 - December 31
Christmas was wonderful.  We had a friend come over and bring us Christmas dinner and I have to admit, I started crying I was so touched.  We have only a few days left of the year.  A couple of days before Christmas I received a wonderful gift from an old high school friend.  She let me know that my Togy, my dog I grew up with, is okay.  I miss Togy so bad, especially on holidays.  I couldn't move him because he was almost completely blind plus he grew up with Nippy, his "wife."  I saw Togy last on November 05, 2007.  I guess I'm going to just be mysterious, because I'm not explaining why I can't/haven't seen him.  I miss my baby so much.

I am thankful for so much this year.  I have my DH and our two kitties to begin with.  I was able to get a stationary bike of of freecycle last week.  I feel so very loved and my DH makes me feel like a princess.  I've made wonderful, wonderful friends on Facebook as well as Twitter (though generally not to the same degree) and I have awesome pen pals that look forward to my letters and I look forward to theirs.  I was able to get my DH a Christmas gift this year and that was wonderful.  I hate not being able to get my baby a present.  Right now DH is sleeping beside me but I'm not sure how much longer he can sleep.  Niki is walking all over him mewing and trying to wake him up.  Her and Sterling are always doing something crazy.  She slept on top of me last night.  I think I'll end this now.  I have decided for the new year that I am going to do monthly resolutions rather than one for the whole year.  I have a mini-resolution for this last week of December.  Actually it's less than a week left of December.  My mini resolution is to blog what I eat everyday and to record what if and what kind of exercise or movement I do each day.

1 comment:

  1. Hello there, I've been following your blog for a while now and this post really touched me. I've had a really rough 2010 as well. My EDS is progressing pretty rapidly, and soon may face surgery to remove part of my intestines. I also have seizures and, until very recently, never really talked about it. Well, I am now, and feel so much better. I'm taking Neurontin for them and for neuropathic pain. The Neurontin seems to be helping, but I feel that I may need to go up a dose. I tried once already and had an episode where I forget where I was for a moment (seizure maybe?), so my dr had me go down to the dose I had been on. Anyway, I've pretty much written a novel here. I just wanted to let you know that you are not alone in this. I would also love to be pen pals if that's ok! Fountain Pens and nice inks are somewhat an obsession of mine and cherish any chance I get to use them!!

    ReplyDelete

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