Today was an especially stressful day, and tomorrow's forecast is more of the same. I have to be up early tomorrow for my physical therapist. I am going to try to remember to ask her about the heaviness in my legs.
I talked to a friend, a fellow EDSer, on facebook last night. We decided to be each other's cheerleaders to get to the doctor. When you have to spend what seems like half your life at the doctor's office you start really hating going to the doctor, if you didn't hate it enough before. My first goal is to call my cardiologist and actually get my butt to University Hospital so that I can get the results of my TTT (Tilt Table Test) and my electrocardiograph. I drew a string around my finger once, but forgot why it was there. I hope that if I blog tomorrow and look back at today's blog I can remember to call my cardiologist. Hopefully nothing is wrong that I didn't already know about. I have a good feeling, I think everything is normal. I don't think I have Dysautonomia, though Dr. W seems to think that from my symptoms I do. I just have a feeling everything is okay.
I joined a site called Chiari - Online Support Group for Patients Affected with Chiari the other day. Everyone on the site has been so nice and supportive. I would like an MRI to be tested for Chiari but first I have to find a competent neurologist, because my current one certainly isn't in my opinion. He's a nice guy until he runs out of patience, but I don't feel that he knows very much--and his patience is pretty short.
It's past one o'clock in the morning, so I think I'm going to go to bed, especially since I have PT tomorrow morning. Yawn!