Today I made my appointment with my
cardiologist for my follow up. I also made my
appointment for my endocrinologist follow up and requested a new script for blood work. I was a little surprised to learn that I haven't been to my endo since 2009. Once I go to the cardiologist the next day I plan to start on the search for an answer to my mystery dx, starting with finding a neurologist familiar with
Chiari. I don't want to think about it too much right now. As for the moment, I'm proud of myself for making the appointments.
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Just to make you smile ;-) |
Good for you!
ReplyDeleteI'm not sure if I should even both investigating Chiari, tethered cord, and spina bifida. From the research I've done there are no recommended surgeons in New Hampshire so if I found out I do have a Chiari there won't be a good way to get it repaired. Yeah, I'm sure there's a neurosurgeon in the state but my understanding is that especially with EDS I don't really want just anyone doing the repair.
Maybe I'm being overly cautious because of my fear of surgery. Who knows. If this neck pain, headaches, and other stuff continues I might not have a choice to at least have it investigated.