My Journey With:

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I ~ Migraines ~ Obsessive Compulsive Disorder ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Friday, October 28, 2011

Journaling week 1


I have the first week of my food/pain journal done.  I know I ate horribly last week, but except for the time since my fall, my pain levels were actually lower than normal.  Go figure.  Since my fall I'm in a flare, but that's another story.  Next time we get food stamps we are going to buy me some Lean Cuisines so I can get something healthier, and more fruit and veggies.  Since DH is also disabled and I physically cannot handle cooking anymore, we haven't been able to eat anything that wasn't prepackaged lately.  It isn't fair that we have to depend on DH for all our meals, but I can't cook anymore.  I miss home cooked meals.  So keep in mind, I don't usually eat this bad and I am going to eat healthier.  This was a real junk food week. The only stuff the food pantry gives is junk food, so that doesn't help much, either.


Friday 21 October 2011

Food: 
cookies
pizza
skinless boneless roasted chicken breast
baked, unsalted fries

Pain:
severe brain fog all day
depressed/anxious
mild headache all day
afternoon:
neck pain 6/10
overall pain 7/10
very weak and shaky
9:45 pm:
neck hurts from turning head, back pain
jaw/head/neck 7/10
overall 7/10


Saturday 22 October 2011

Food:
3 sugar glazed donuts
pizza rolls
8 fried clam strips (them we baked at home)
Blueberry morning cereal
skim milk

Pain:
wake: 8:00 am
neck 7/10
pain in neck, jaw, back, legs
back very stiff
overall 7/10
pain in back of head
weak, not as weak as yesterday


Sunday 23 October 2011

Food:
banana
Blueberry morning cereal
skim milk
8 pizza rolls
3 wheat crackers with lunchmeat and cheese on them
baked, unsalted fries

Pain:
wake: 10ish
very stiff
7/10 overall
spine/leg pain
forgot meds last night
4:51 pm:
neck 6/10
jaw spasms
back pain
overall 6/10
weak, though not as weak as last 2 days
late afternoon/early evening:
neck pain


Monday 24 October 2011

food:
blueberry morning
skim milk
grown-up lunchable (turkey/ chicken/ crackers/ cheese lunchable)
chicken club lean cuisine
tiny chocolate ice cream

pain:
wake: 10 am
neck 3/10
overall 6/10
legs stiff
late afternoon:
sat in desk chair could hear spine go pop in middle back, horrible pain shooting up & down spine
napped on 3 ice packs
8:42 pm
bad back!
overall 8/10


Tuesday 25 October 2011

food:
Kashi Go Lean cereal
skim milk
cottage cheese
crushed pineapple in pineapple juice
pizza

pain: 
wake: 8 am
nap
1:13 pm:
right shoulder, neck, back, legs
overall 7/10
4:00 pm
stomach pain, neck, leg, back, right shoulder
nap
5:57 pm
back 7/10
bedtime:
overall 8/10
right hip pain


Wednesday 26 October 2011

food:
Kashi Fo Lean Crunch cereal
skim milk
7 grain mix
skinless, boneless baked chicken
baked, unsalted french fries
small ice cream
pancakes
sugar free syrup

pain:
wake: 10:30 am
stiff all over
achy
overall 7/10
2:25 pm:
subluxed right hip, fell
back and forth between 8/10 and 9/10


Thursday 27 October 2011

food:
waffles
sugar free syrup
small ice cream
chocolates
peanut butter wafter cookies

pain: 
FLARE DAY #1
Severe pain
9/10 to 9.5/10 all day

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