My Journey With:

Ehlers-Danlos Syndrome Hypermobility Type (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Complex Partial Epilepsy ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar I Rapid Cycling With Psychosis ~ Migraines ~ Obsessive Compulsive Disorder (My OCD is currently in remission except for hoarding) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Monday, December 5, 2011

Pain diary/Food diary for the last two weeks

Tuesday 22 November 2011

Food:
2 bowls blueberry morning
skim milk
coffee with creamer
ice cream
biscuits
Cambell's sausage gravy

Pain:
wake: 11:15 am
pain 5/10
stiffness is minimal
low pain
able to walk around the house without problems
energy higher than normal
9ish:
pain wave/pain spike
pain 8/10
11:26 pm
pain 7/10




Wednesday 23 November 2011

Food:
blueberry morning
skim milk
Lean Cuisine Chicken Club
Coffee with non-fat creamer
2 bites of a peach
lasagna
nonfat cottage cheese with crushed pineapple in its own juices

Pain:
wake: 11:15 am
pain 6/10
8:20 pm
back, hip, thigh pain 7/10
went to grocery store
slightly subluxed left hip
all day: average 6/10


Thursday 24 November 2011

Food:
THANKSGIVING
2 frozen waffles with no syrup
ham with cherries and pineapples
Stovetop stuffing
2 rolls
Cranberry/rasberry lite sauce
Pumpkin pie with fat free cool whip

Pain:
Forgot Meds Last Night
wake: 9:30 am
stiffness 8/10
pain 8/10
fatigue 8/10
couldn't even lift my hands to brush my hair I was so fatigued
later:
nap from neck pain
pain 8/10
4:27 pm
neck pain 8/10
fatigue 7/10
overall pain 8/10
8:15 pm:
neck 8/10
overall pain 7/10
fatigue 7/10



Friday 25 November 2011

Food:
Cranberry/rasberry lite sauce Thanksgiving leftovers
4 frozen waffles with no syrup
1 orange
3 bites pumpkin pie with fat free cool whip

Pain:
wake: 7:45 am
pain lower than yesterday
very stiff
pain 6/10
5:19 pm:
stiff
back, leg pain
pain 7/10
1:30 am
back pain
sore throat all day - feels like a golf ball is stuck in it
throat very red, but not swollen
pain 7/10



Saturday 26 November 2011

Food:
orange
chocolates
3 pieces of pizza

Pain:
wake: 11:15 am
pain in right shoulder, back, legs, hips
pain 7/10
fatigue 5/10
FLARE
pain - severe
crying from pain
shoulders, back, legs, hips, elbows, neck pain
pain 9/10
8:12 pm:
neck, back, shoulders, legs, knees, hips, buttocks, feet
pain 8/10
fatigue 7/10


Sunday 27 November 2011

Food:
2 pieces toast with margarine
2 bowls bran flakes
skim milk
chocolate cool whip

Pain:
wake: 10:45 am
pain all over
stiff
pain 7/10
12:00 noon
severe hand, feet, toe pain
crying from pain
pain 8/10
5:09 pm:
back, arm, hand, torso, breasts, legs, hips, knees, groin, ankles, calves, thighs, shoulders, neck pain
pain 8/10
fatigue 7/10
6:00 pm
seizure
7:05 pm
cold, achy
beat up feeling, sore, feel like I've been kicked all over
Stayed up all night to work on a writing assignment




Monday 28 November 2011


Food:
Lean Cuisine Chicken Club
Skinny Cow chocolate
Sugar free strawberry jello/sugar free strawberry fluffy stuff
nonfat cottage cheese with crushed pineapple
frozen fried clams (we cooked them in the oven)
pizza rolls

Pain:
Only slept 1 1/2 hours because I was studying
Forgot night meds last night
wake: 5:00 am (after sleeping 1 1/2 hours)
hurt all over!
eyes dry, jaw, neck, shoulders back, arms, elbows, wrists, hands, hips, torso, breasts, knees, legs, ankles, feet, fingers, toes pain
bad POTS day
pain 7/10
fatigue 7/10



Tuesday 29 November 2011

Food:
bran flakes
skim milk
chocolate pie
pizza rolls

Pain:
wake: 11:15 am
slept good, deep sleep
stiff, achy
pain 6/10
3:38 pm
back, arm, leg, ankles, foot, hip pain
pain 5/10
fatigue 5/10



Wednesday 30 November 2011


Food:
bran flakes
skim milk
chocolate pie
fish sticks with ketchup

Pain:
FLARE
Forgot last night's meds
all day 9/10, close to a 10/10
lots of tears
incredible pain
fatigue is horrible






Thursday 01 December 2011


Food:
cherry poptarts
fried rice
crab ragoon with sweet and sour sauce
sesame chicken

Pain:
wake: 8:00 am
wrists, shoulders, back, legs, hips, buttocks, toes pain
pain 8/10
fatigue 7/10
Started taking magnesium today



Friday 02 December 2011

Food:
2 bowls bran flakes
skim milk
leftover fried rice
leftover sesame chicken

Pain:
Stayed up all night
back, ankles, knees, left leg pain
pain 7/10
2 naps today
9:39 pm:
neck, hips, buttocks, thighs pain
pain 7/10



Saturday 03 December 2011

Food:
bran flakes
skim milk
3 pieces pizza

Pain:
wake: 9:00ish
stiff, achy
pain 7/10
chased Niki and pulled a muscle in my back
pain is 8/10
7:20 pm:
severe back pain all day
pain 7/10 after laying down and drinking ginger tea



Sunday 04 December 2011

Food:
2 bowls bran flakes
skim milk
2 maraschino cherries
1 bowl ice cream
BBQ tortilla chip
3 pieces pizza

Pain:
Pulled muscle in back yesterday
wake: 11:30 am
back pain!!!
pain 8/10



Monday 05 December 2011

Food:
coffee with creamer
bran flakes
skim milk
ice cream
BBQ tortilla chips
Lean Cuisine Chicken Club
Crunch 'n Munch

Pain:
wake: 9:15 am
pain 7/10
12:15 pm:
back, stomach, legs, neck pain
shaky when standing
nauseated from taking vitamins on an empty stomach
really nauseated when bending over
pain 7/10
7:50 pm:
shoulders, back, arms, fingers, hips pain
bad POTS day
pain 7/10 and rising

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