My Journey With:

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I ~ Migraines ~ Obsessive Compulsive Disorder ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Monday, January 16, 2012

Happy Monday! Let's do our ABCs!

A
– Available: Only to my sweetie. ;-)
– Age: 30
– Animals: Cats and dogs.



B
Beer: Eww.
Best friends: Om, Mandy, Vanessa, Michelle.
Body Part on opposite sex: I usually go for the same sex, DH is the opposite sex though, and I love his eyes and shoulders.  But that's just him.  Same sex is eyes, face...and what's a nice way of saying I like boobs?
Best feeling in the world: Love.
Best weather: Blue sky, fluffy white clouds, slight breeze, about 75 degrees,  I love looking at the puffy white clouds and making out shapes in them.
Been in Love: Yes, still am.  ;-)
Been on stage: Yes.  It was nerve wracking.  It was just as bad to be a shot put thrower.  Everyone was looking at me, it was like I was on a little stage all by myself.  I was fine until halfway through my second season until I realized everyone was looking at me.  After that it all went downhill and I didn't ever do a third season, but that's not the only reason.
Believe in Magic: Of course.  ;-)  
Believe in Santa: I believe in the spirit of joy and giving that Santa represents.
Brand: Clothes: Kmart.  They have great prices and the clothes always fit so good (except that really, really cheap brand-it sucks).




C

Candy: Chocolate...dark chocolate, milk chocolate, chocolate with almonds, hazelnuts, or peanuts...
Color: Pink.  Pink and brown, actually.
Chocolate/Vanilla: Chocolate!
– Chinese/Indian/Italian: Chinese food.  DH and I go to this little place about ten minutes from our house.  They are really cheap and the food is really good.  I hope that's a good thing.
– Cake or pie: Chocolate cake with chocolate frosting.  Are you noticing a chocolate trend?
Cheese: I love it!  Especially sharp cheddar, baby swiss, provalone, and of course, chocolate cheesecake.




D

Day or Night: Nighttime.
Dancing in the rain: Yes!  I don't know if I could dance now, but I loved doing it when I could.  :-)




E

Eyes: Hazel green/blue/brown.  That's a picture of my real eyes below.
Ever failed a class?: Yes, I didn't withdraw from the class formerly because I didn't know I was supposed to, so all my grades dropped to Fs.  :-(
Enemies: All former abusers.  I hate them all.
Exercise: Alas, no.




F

First thoughts waking up: If DH is in bed my first thought is to kiss him, if he's not in bed when I wake up my first thought is, where is DH?
Food: I like it as much as any normal person.  Except chocolate.  I really, really love chocolate.  That's why I'm trying really hard to stay away from it.  



G
Greatest Fear: Something happening to DH.  After that one, my greatest fear is lupus...what it does to my friends mainly.  I think I'd be more scared to get a lupus diagnosis than a cancer diagnosis, not that I want either!!!
Get along with your parents: No, no, no.  The Order of Protection I have against them is expired, and there is no way I'm getting within 100 miles of them ever again.



H
Hair Color: Light brown.
Happy: Sometimes.
Holiday: My favorite holiday is Christmas! 



I
Ice Cream: Chocolate ice cream with chocolate sauce and brownie chunks.  Hiland makes it and it's called Chocolate Brownie Fudge.



J
Jewelry: I don't wear any on a regular basis.  When I do wear jewelry it's my Medic Alert necklace.
Job: Kittymommy.




K
Kids: I want one in the near future.
Kickboxing or karate: The only thing I know about them is the Karate Kid did karate and Tae-Bo is a form of kickboxing.
Keep a journal?: I have all my life, but not so much since I haven't been able to hand write.  



L
Love: Love makes life worth living.
Laughed so hard you cried: I can't remember the last time, but I've done it.



M
- Milk flavor: Skim in my cereal, otherwise the milk has to be in something, i.e. cheese or yogurt, for me to ingest it.  I do like vanilla and chocolate (of course!) soy milk, though.
Movies: My all-time favorite is probably Napoleon Dynamite.
Motion sickness: I get very nauseated in the car sometimes, but don't throw up.



N
Number: 3, 16.  When I was a little girl my Daddy used to sing me "Sixteen Candles," and 16 has been my favorite number since then.



O
One wish: For my family (DH, me, our future child) to be safe, healthy, and happy.



P
Perfect Pizza: Imo's St. Louis style pizza with sausage, pepperoni, hamburger, onion, and extra cheese.
Pepsi/Coke: Pepsi Max (it's diet pepsi with loads of extra caffeine)
Perfume/Cologne: I really like Burberry Body.



Q
Quail: Um, do you mean have I ever been quail hunting?  No, I haven't, but my dad used to go.



R
Reason to cry: Just about any strong emotion makes me cry.
Reality T.V: Trashy.
Radio Station: Pandora and AOL Radio.



S
Song: "All Summer Long" by Kid Rock.
Shoe size: 10, in some shoes it is a 10 wide.  
Salad Dressing: Vinaigrettes.
Skinny dip: If I had the chance.
Strawberries/Blueberries: Strawberries.
Sport: I like to watch "kitty boxing."  Kitty boxing is when the cats are playing and tumbling over each other.  It's so adorable!
– Sex: Female.



T
Tattoos?: No. The idea of it being there permanently when I may not want it later makes me say no.  The only tattoo I would consider is Togy's name on my ankle with some small feminine design.
Thunderstorms: I hate them when I'm home alone, and they aren't much better when DH is here.  I hate thunderstorms.




U
Unpredictable: Not really, but my moods sure as hell are.  Thank you, bipolar.



V
Vacation spot(s): England, Wales, Ireland, and Australia are my dream vacation spots.

Hadrian's Wall - I want to go here so bad!


W
Weakness: I'm very sensitive.
Who makes you laugh the most: DH and the cats.  Next would be my friends on Twitter.  ;-)
Worst Weather?: Ice storms.



X
X-Rays: My hand, I don't remember which one, though.  I couldn't get my finger back in after over an hour of trying and it was really painful, so I went to the ER.  I ended up getting it back in myself, but they still insisted on X-Rays.  When I got my X-Ray I did the whole "flying bird sign" thing.  It's a neat trick that EDS affords me.  I'm not supposed to do it, but it looks so cool when I do funky stuff with my hands.  That is probably why my hands are getting worse.  I thought I'd get to see my X-Rays and I thought that would look cool, without disturbing the information the doctor needed.  I didn't get to see the X-Rays, though.  :-(



Y
-Year it is now: 2012.
-Yellow: The closest yellow thing to me is my yellow highlighter.



Z
Zoo animal: Zebras!


Friday, January 13, 2012

Please help save this disabled child's life!

Disabled people have been treated badly for a long, long time.  Disabled people shouldn't be treated like that, but even more so a disabled child.  Today I read about a little disabled girl named Amelia.  She's been through a whole lot, and has a lot more to go through.  Amelia has mental retardation and needs a kidney transplant to save her young life.  The doctor who makes the recommendation to the transplant team is recommending against Amelia getting a kidney transplant because she is mentally retarded.  Read that sentence again, I know its hard to believe.  Amelia will die without a new kidney.  This doctor is virtually signing her death warrant just because she is developmentally delayed.

What can you do?

You can sign this petition at change.org to be given to the Children's Hospital of Philadelphia.  Change.org has caused many changes for the better across the world.

Please sign the petition here.

To read more about Amelia's story go here.



                                                      

Endo today

Today I am going to see my endocrinologist at University Hospital.  I'm really glad to finally be seeing him, as I have all the symptoms of my thyroid being low.  I imagine he will increase my Synthroid, but I also think that he will need to run some blood tests first.  He will be doing an ultra-sound of my thyroid, too.  Last time I went I think I had two or three nodules on my thyroid and one on my parathyroid.  The right side of my thyroid was also enlarged.

I love this woman's thyroid art

According to Mayo Clinic and Women to Women, symptoms of hypothyroid are:
  • Sluggishness
  • Increased sensitivity to cold
  • Constipation
  • Pale, dry skin
  • A puffy face
  • An elevated blood cholesterol level
  • Muscle aches, tenderness and stiffness
  • Pain, stiffness or swelling in your joints
  • Muscle weakness
  • Heavier than normal menstrual periods
  • Depression
  • Severe fatigue, loss of energy
  • Weight gain, difficulty losing weight
  • Headaches
  • Dry skin, brittle nails
  • Brittle hair, itchy scalp, hair loss
  • Irregular periods, PMS symptoms
  • Calcium metabolism difficulties
  • Difficulty tolerating cold and lower body temperature
  • Sleeping more than average
  • Diminished sex drive
  • Puffiness in face and extremities
  • Hoarseness
  • Bruising/clotting problems
  • Elevated levels of LDL (the “bad” cholesterol) and heightened risk of heart disease
  • Allergies that suddenly appear or get worse
  • Persistent cold sores, boils, or breakouts
  • Tingling sensation in wrists and hands that mimics carpal tunnel syndrome
  • Memory loss, fuzzy thinking, difficulty following conversation or train of thought
  • Slowness or slurring of speech
  • Appearance of a goiter, an enlargement of the thyroid that is externally visible
I've got a lot of these symptoms, so I think my thyroid levels are low.  I haven't had any lab tests done in awhile, its actually been over two years.  Like I said, though, he will be doing an ultra-sound.

By the way, this month is Thyroid Disease Awareness Month!


Thursday, January 12, 2012

The first "Twitter Thursday"

I'm going to try "Twitter Thursdays," for awhile, and see how it goes over.  What is Twitter Thursday, you ask?  It's a compilation of ten really interesting tweets that I see tweeted today, Thursday.  So, here goes...


























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