My Journey With:

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar I Rapid Cycling With Psychosis ~ Migraines ~ Obsessive Compulsive Disorder (My OCD is currently in remission except for hoarding) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Sunday, November 29, 2015

Pinched or irritated nerve in shoulder

Shoulder Pain
I've got either a pinched nerve in my shoulder, or an irritated one. This is the first day I've been able to use my right arm in awhile, and even then I haven't been able to use it much. That means this won't be a long entry, as I'm right handed and having to type with only my left hand. The pain is especially bad when I move my fingers, or move my arm away from my body. The pain comes shooting down from the top of my shoulder where my bra strap would be, to the end of my fingertips. It's a sharp, burning, shooting pain, so that made me suspect that it may be a pinched or irritated nerve. DH, my knight in shining  armor, surprised me with another TENS unit. I'll put pictures of that up sometime soon. I saw my rheumy last week and the appointment went well. I will also fill you in on that as soon as I can. 

Tuesday, November 24, 2015

New Year's Resolution starting early this year

My cane
My cane
It may not be December yet, but I already know my New Year's Resolution. I want to be off my walker and only need a cane by December 31, 2016. This would be a big deal to me, not only making it easier to go places, but my self-esteem would really go up. I usually am fine with my looks (I like my face, but not by stomach), but using a walker in my mid-thirties is a huge blow to my self-esteem. I really hope that I can fulfill this resolution. I have fulfilled New Year's Resolutions before, so I'm pretty sure I can stick with this. I'll never be able to get rid of my EDS or bipolar, but I can make my EDS less painful. I believe that I can do this goal. I'm going to try to blog more, so I can keep you updated on my progress.

I took a nap earlier and can't seem to wake up all the way from it. I keep nodding off. When I napped on the couch Niki crawled on top of me and slept on me. It was the cutest, sweetest thing!

Katya and Mommy
Katya and Mommy
My pain levels have been bearable the last few days, which I'm very, very thankful for. I haven't had a dislocation in quite awhile; that's another thing I'm thankful for. I got an Icy Hot TENS unit. TENS stands for transcutaneous electrical nerve stimulation, it sends small electrical currents out that result in pain relief. It's used on the back, for back pain relief. You can get TENS units from the doctor, but this one DH got me at the grocery store. I'm not sure if prescription ones help more or not, but so far the Icy Hot one is doing well. The biggest draw backs so far are that I can't wear a bra and wear the TENS unit on my upper back, it's really hard to turn it on or change levels when it's in certain areas of my back because you have to push the buttons hard. The biggest issue I see, though, is that battery life is really short. The first day I used it was the day before yesterday afternoon, and by evening the next day it needed a new battery. DH bought a few of them from Dollar General. I haven't used my TENS unit today, because my upper back is where I need it the most and I want to wear a bra. I'm going to ask my rheumy next appointment if she can prescribe one. It said if you put it on your neck it can cause your throat to swell shut, and if you put it on your chest it can cause a fatal heart murmur. That doesn't sound like much fun, so I'll stick to my back.

Monday, November 9, 2015

Solemn Anniversary of Kristallnacht

Today was the solemn anniversary of Kristallnacht in 1938 Germany, also called the “Night of Broken Glass.” 30,000 Jewish men were arrested and sent to concentration camps, and those who weren't were terrified for their lives.  Around 100 Jewish people were murdered.  Kristallnacht marked the start of the violence against the Jewish people that would lead to the death of six million Jewish people during World War II.  Thousands of Jewish shops were destroyed that night, and it wasn't long afterward that Hitler unveiled the "Final Solution" to kill all Jewish people.

I wish many blessings to those affected by the Holocaust and their descendants, both living and dead, and the struggles the Jewish people still face everyday as a result of antisemitism.

Kristallnacht, 1938 Germany
Kristallnacht, 1938 Germany

Kristallnacht, 1938 Germany
Kristallnacht, 1938 Germany

Kristallnacht, 1938 Germany
Kristallnacht, 1938 Germany

Kristallnacht, 1938 Germany
Kristallnacht, 1938 Germany



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