My Journey With:

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar I Rapid Cycling With Psychosis ~ Migraines ~ Obsessive Compulsive Disorder (My OCD is currently in remission except for hoarding) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Saturday, November 5, 2016

30 Day Chronic Illness Challenge: Day 5

Day 5: How does being chronically ill make you feel?

30 Day Chronic Illness Challenge
30 Day Chronic Illness Challenge
Being chronically ill makes me feel scared, isolated, lonely, and unsure about the future. I don't know whether I'll end up in a wheelchair someday, or succumb to my depression. The future is a huge question. Being sick is lonely. I don't really know anyone in my town, but I have lots of friends online who are EDSers, POTSies, have fibromyalgia, etc. and they are a huge support to me. Even then, I sometimes just feel so lonely. Having a question mark in the future as to what my health will be like is unsettling, to say the least.

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