My Journey With:

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I Rapid Cycling ~ Migraines ~ Gastroesophageal Reflux Disease (GERD) ~ Obsessive Compulsive Disorder (OCD) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Nonsuicidal Self-Injury (Self-Harm) ~ Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Specific Phobias ~ Chronic Headaches

Wednesday, July 14, 2010

Suspected Transient Ischemic Attack (TIA)...WHAT??

I saw the neurologist today about that spell I had yesterday.  I had a spell where I could only walk left.  It was really weird.  Afterwards I slept for an hour in a really deep sleep.  Anyway, Dr. A seemed to think it was more likely to be a TIA which is a Transient Ischemic Attack, or mini-stroke, more than a seizure.  I have temporal lobe epilepsy but, like I said, he didn't think this was a seizure.  He told me to take aspirin every day.

I thought that was kind of bizarre, I mean I'm only 29!  I don't know if that is a vascular or neurological in cause.  I mean could it be the Ehlers-Danlos Syndrome?  For anyone who doesn't read my blog, I have the hypermobility type but a consult rheumy said he thought I might have the vascular type.  I'm seeing Dr. Willing in St. Louis, Missouri next month, she is an EDS specialist.

So...what now?  I guess take aspirin everyday and wait to see Dr. Willing to see if it is EDS related.


  1. Weird, I'd go see another doctor sooner. Just my two cents. Tonja

  2. I'm so sorry this happened. Bad news is that if a vessel leaked, which afaik is what a TIA is or a clot, then it could be the EDS. Did your neuro order a scan? Then again, if the TIA was minor I'm not sure if anything would show up. You'd probably want to see the EDS doc before that brain blood vessel scan thing that I can't remember the name of anyway.
    Your Neuro seems to be going on the theory that it was a clot based on the aspirin. Have you been checked for Anti-Phospholipid Antibody Syndrome? It is a simple blood test so it might be worth asking for it.
    Waiting is horrible. I wish I could suggest something. FWIW, I get stroke like symptoms with my migraines. Scary as hell.

  3. @Pink Doberman - I don't have another doctor to see. I am hoping he knows what he is doing!

  4. @Wacky Lisa - I just typed out a long message then the computer messed up. So I'll try again. lol

    I am not allergic to aspirin, he told me to take one every day to prevent another TIA or worse.

    I am seeing the cardiologist tomorrow. I want him to check for Dysautonomia and Mitral Valve Prolapse.

    I am hoping that when I see Dr. Willing in STL she will order any more tests that need to be done to rule out further problems, like an MRI to check for damage or for mild Chiari.

    And thank you Lisa for always reading my blogs. You are awesome!


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