My Journey With:

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I Rapid Cycling With Psychotic Features ~ Migraines ~ Gastroesophageal Reflux Disease (GERD) ~ Obsessive Compulsive Disorder (OCD) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Nonsuicidal Self-Injury (Self-Harm) ~ Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Specific Phobias ~ Chronic Daily Headache ~ High Cholesterol

Tuesday, December 31, 2013

2013 in Pictures













Monday, December 30, 2013

Missing y'all

Tonight I'm really missing some people that I've lost.  Some of these people I've lost this year, some a few years ago, and some many years ago.  I thought I'd share their picture and a short bit about them, to keep their memory alive, here on my blog tonight.

 My Grandpa, my mom's dad, was the type of guy you could count on for anything; he was very smart and had a big heart.  Grandpa was a Korean War Navy veteran.  He loved his country, his wife, his children, his grandchildren, and was an active member of the Catholic Church in the town he lived in.

I won't beat around the bush and pretend I liked my Grandma, my mom's mom, or that she liked me.  However, my Grandpa loved her very much.  She passed away from early-onset Alzheimer's, which is seven times more hereditary than normal Alzheimer's.

My friend Glenda was a funny, compassionate woman who put her four kids first.  She worked hard while going to school and raising four children as a single mother; unfortunately she only got to work a few years with her new degree before she passed away.

Aunt Gloria
This is my favorite picture of my Aunt Gloria, my dad's sister; it's circa early 1990s.  She's so beautiful in it, and it's how I like remembering her.  She lived a hard life, and was one of the best and hardest working women you'd ever meet. She'd not only give you the shirt off her back, but she'd boil water to wash it first.  She was my dad's sister, and helped raise him.  I will always remember her with love.

Uncle Bob
Uncle Bob, Aunt Gloria's husband, was an awesome guy who very recently passed away.  I have fond memories of him teasing Aunt Gloria.  He was both a brother and father to my dad.

Uncle Little Bud
My dad's brother, Uncle Little Bud, passed away about the same time Glenda did.  He had a lot of children he left behind, including two small children-who are not so small anymore.  I miss him and his ornery sense of humor.

Nippy was my sister's dog that she had as we grew up.  She was very sweet, and Togy's best friend in the world.

Togy was my very best friend, after Jim, in my whole life.  No matter what was going on, Togy was there for me.  He even got depressed when I did, whether he saw me or not.  We were spiritually linked.  He still watches over me today.  He passed away at age 19, but will stay alive in my heart forever.

Grandpa Ezra
I don't know much about Grandpa Ezra, other than he died of Leukemia at age 66 and that he married my Grandma Cles when he was in his 30s and she was entirely too young.  But, to his credit, things were not only different back then, but I'm talking about the deep Ozark Mountains, as well.  He was a handsome man and was reportedly very strong.

Grandma Cles
I don't have any pictures of Grandma Cles when she was young, only a few pictures of her in the last decade of her life.  She fought breast cancer and recovered, despite going to a butcher of a "doctor," only to pass away from lung cancer.

My Great Aunts

I can't ever remember which of my Great Aunts are which, so I won't include any names.  I never knew them well.

As this year comes to a close, I am mindful of all the people I have lost.  At the beginning of the year I want to take a look at new beginnings, but now, at the close of 2014, I wanted to whisper good-byes.

Sunday, December 29, 2013

Starting myfitnesspal

Today was a nice day, except for my shower, where I almost had a seizure and Jim had to help out by getting quickly my medication to me.  I decided that in January 2014 my monthly goals are as follows:
  • cook or bake one thing this month
  • lose three pounds
  • do my trigger point releases three to five times a week
  • meditate daily, even if it's for a short time before falling asleep
I think this list is definitely doable, but it will take some work.  As of today I've already started keeping track of what and how much I eat on myfitnesspal on my Kindle; calories, fat, carbs, fiber, etc.  To start with, my goal is 1750 calories a day, though I may drop it.  Right now it's past midnight and I don't plan on eating anymore tonight.  I was under by 421 calories; I had 1329 calories today.  Regardless of the fact that I weight much more than I wish I did, I really don't think I eat a whole lot, though sometimes I really splurge on chocolate.  I need to reign that in, and only eat chocolate tiny bits at time.  I think I can do that.  Regardless, a woman only really needs 1200 calories if she is sedentary (which is me), so I think the 1329 I got today was still acceptable.  I still have that normal constant feeling of guilt like I ate too much today, though.  Of course that's just a calorie count, and not a fiber and fat count.
I am using myfitnesspal on my Kindle

I've been hurting a lot since winter set in.  I've been on Facebook a lot and back on Twitter more often again to keep my mind off the pain.  It's been hard to get back to my pen pals but tomorrow I really want to just try and get through it.  I started on one letter tonight, and think I may be able to get it and another letter done tomorrow, unless my hands are in incredible pain.

After the New Year I want to get in to Occupational Therapy.  I'm a bit worried since our car doesn't always run, but it's really important to me to start it.  I need some type of scissors that is easier for me to hold, and I'm hoping I can learn about that and other stuff that could help me in therapy.

My hands are absolutely killing me, and my Aspercreme isn't helping any, so I'm going to end this now.  


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