My Journey With:

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness (Complex Partial) Seizures ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar Disorder Type I Rapid Cycling With Psychotic Features ~ Migraines ~ Gastroesophageal Reflux Disease (GERD) ~ Obsessive Compulsive Disorder (OCD) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Nonsuicidal Self-Injury (Self-Harm) ~ Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis ~ Irritable Bowel Syndrome (IBS) ~ Seasonal Affective Disorder (SAD) ~ Specific Phobias ~ Chronic Daily Headache ~ High Cholesterol

Friday, November 6, 2009

I'm 28 going on 68. How do I get my hands on a walker?

After all of the excitement I had yesterday morning to go to Water Therapy, around noon I was hit with horrible pain.  I'd put yesterday afternoon on a 1-10 scale as a 9.  I couldn't walk.  Jim had to help me to go to the bathroom.  I had to lean on him and my knees gave out numerous times.  My left wrist hurt so bad that I couldn't use my left hand, it didn't work much.  I stayed in bed for the rest of the day, on pain killers and muscle relaxers. Getting up to go to the bathroom seemed an impossible chore.  I really need to get a walker for days like that but I don't know how to go about getting one.  I also need to get one of those old people benches for the shower.  It hurts so bad to take a shower and stand for that entire time.  I feel as if I'm not 28 but 68.  I feel 40 years older than what I am.  That night I finally figured out how to put my wrist back in place and since then I can use my left hand.  It was dislocated, which was why I couldn't really move it.  I am not sure how I put it back in place though!  When I called the physical therapy department at the hospital to ask if I should still go I ended up breaking down in tears because of the intense pain.  The water therapy therapist called me later and I was trying so hard not to cry form the pain.  Today (so far) I feel better than yesterday afternoon/evening, but I'm still 7 on the 1-10 scale.  I'm praying I don't get back up to a 9, or worse yet, a 10.

Monday, November 2, 2009

Tomorrow is finally THE DAY for WT

I'm so excited, tomorrow if finally THE DAY that I'll get to go to water therapy.  My case worker is driving ahead of us to show me where the place is, there aren't any thunderstorms predicted for tomorrow, and I already got a reminder call!  I'm so excited!  My three week flare is also over.  Now my pain is a 4 on a scale of 1 to 10, which is really good!  :-)

Thursday when I saw my therapist (the MSW kind) I ended up having flashbacks in the waiting room and going outside.  I've  been having more and more flashbacks lately.  I heard once that when you are having a lot of flashbacks it sometimes means that you are facing more of your past because your brain feels strong enough to do so.  I think that it could be true.  I know I have blocked out things only to relive them in flashbacks years later, over and over again.  I guess you can't work through them until then.

I got stamps!  Yay!  I'm really excited because now I can finally mail a lot of the envelopes to pen pals I've needed to mail for over a week.  Another reason I'm so excited...we got Christmas Cards!  Yay!  Happy Christmas (almost)!  :-D I want to get them out the beginning of next month.

Okay does anyone else get really annoyed at the Progressive commercial lady?

I'll write more later!


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