I was a bit frustrated yesterday. My home health aide, which is also my friend, told me that all I need is to get fresh air. This is directly after I told her about how my pain, dislocations, and seizures have been doing lately. She also suggested I just go bowling because it would make me feel better to get out of the house. When I told DH about it later he was flabbergasted. I tried explaining to her that people with EDS should not go bowling, but she wouldn't listen. When I was talking with DH later he laughed and said I'd dislocate my "shoulder, fingers, wrist, elbow, and possibly something else" if I went bowling. Obviously she really doesn't understand what EDS is!
My Journey With:
Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar I Rapid Cycling With Psychosis ~ Migraines ~ Obsessive Compulsive Disorder (My OCD is currently in remission except for hoarding) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches