My Journey With:

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar I Rapid Cycling With Psychosis ~ Migraines ~ Obsessive Compulsive Disorder (My OCD is currently in remission except for hoarding) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Thursday, October 22, 2009

Introduction and useful links

I guess I'd better introduce myself first.  My name is Amy and I am a Survivor.  


I am a chronic pain survivor.  I deal daily with chronic pain that is often completely debilitating.  I have been diagnosed with Fibromyalgia and Hypermobility Syndrome, which is possibly Hypermobility Ehlers-Danlos Syndrome.  Today I visited the physical therapist for an evaluation.  He said that if I started out in the PT room we'd be doing more harm than not.    So...I am going to do water therapy until my joints are strong enough to use out of the pool.  Yay!  I'm very excited to finally get to do this.  


I am mental illness survivor.  I have the diagnosis of bipolar disorder.  That means that while everyone has ups and downs in life, mine are extreme to the point where the greatly interfere with my life.  Working for years at it, my bipolar is pretty much under control, though I tend to be depressed.  


I am an abuse survivor.  I have been emotionally, physically, and sexually abused in my life.  


I am incredibly honest and I welcome comments.  My blogs will usually be longer, but today I just wanted to introduce myself a bit and to post some great links.

These links are to websites, blogs, and youtube channels that explain all of these better than I could.


Websites:
Ehlers-Danlos Syndrome Symptoms due to collagen disorder

Ehlers-Danlos Syndrome Mayo Clinic

What Is Ehlers-Danlos Syndrome?

EDS: Ehlers-Danlos Support Group

HMSA The Hypermobility Syndrome Association

NIAMS Fibromyalgia

National Fibromyalgia Association

Fibromyalgia Mayo Clinic

About.com Fibromyalgia and Chronic Fatigue Syndrome

About.com Chronic Pain




Blogs:
My Life with Ehlers-Danlos Syndrome
Our Journey with Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome -> Tammy's Story

Ehlers-Danlos Syndrome-Deal With It



YouTube Channels:
Rockerchick76's Channel

BuddyBoy091994's Channel

angelEDSer's Channel

ufo8mykat's Channel




Please feel free to subscribe to my blog, subscribe to me on Youtube, or to follow me on Twitter.

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