My Journey With:

Hypermobile Ehlers-Danlos syndrome (hEDS) ~ Postural Orthostatic Tachycardia Syndrome (POTS) ~ Focal Impaired Awareness Seizures (Complex Partial Seizures) ~ Fibromyalgia ~ Chronic Myofascial Pain (CMP) ~ Polycystic Ovarian Syndrome (PCOS) ~ TMJ Dysfunction ~ Bipolar I Rapid Cycling With Psychosis ~ Migraines ~ Obsessive Compulsive Disorder (My OCD is currently in remission except for hoarding) ~ Keratosis Pilaris (KP) ~ Complex-Post-Traumatic Stress Disorder (C-PTSD) ~ Panic Disorder ~ Generalized Anxiety Disorder (GAD) ~ Social Anxiety Disorder (SAD) ~ Non-suicidal Self-Injury (NSSI or SI) ~ Painful Piezogenic Pedal Papules ~ Hashimoto's Thyroiditis (Autoimmune Hypothyroidism) ~ Irritable Bowel Syndrome ~ Seasonal Affective Disorder (SAD) ~ Multiple Phobias ~ Chronic Headaches

Tuesday, November 1, 2016

30 Day Chronic Illness Challenge: Day 1

I created part of the 30 Day Chronic Illness Challenge to do for Survivor during the month of November 2016, and parts I found on the internet. Any blogger may also do the challenge. So, let's start, and here's the challenge!


30 Day Chronic Illness Challenge
30 Day Chronic Illness Challenge


30 Day Chronic Illness Challenge

Day 1: Introduce yourself. What illnesses do you have? How long have you had them?

Day 2: How have these illnesses affected your life?

Day 3: How did you get a diagnosis?

Day 4: How have your friends and family reacted to it?

Day 5: How does being chronically ill make you feel?

Day 6: If you could have told yourself something when you first remember these symptoms arising, what would you have said?

Day 7: What was the biggest realization you have had?

Day 8: Where do you see yourself in 5 years time?

Day 9: Have you ever tried any alternative therapies? If so, what? Did they work?

Day 10: What little things makes your life easier?

Day 11: Why do you believe you have this illness? Bad luck, a higher power, karma, or something else?

Day 12: Briefly explain to a healthy person what it is like to live with this illness.

Day 13: Has your physical illness had any effect on your mental health? Explain.

Day 14: Give 5 things you are grateful for.

Day 15: What would you say to people newly diagnosed with this illness?

Day 16: What is your favorite inspirational quote?

Day 17: How would things be different if you weren't ill?

Day 18: Do you think you have become a better person through being ill? Explain.

Day 19: How do you feel about the future?

Day 20: Have you met anyone with the same illness? Did it help?

Day 21: What networks or websites have you used for support or information about your illness?

Day 22: How do you feel about how you have been treated by the medical system? Explain.

Day 23: What do you say to yourself when you need a pep talk?

Day 24: Do you use mobility aids? If so, what?

Day 25: What would make life easier for you if society were more disabled inclusive?

Day 26: Does medication help your health? How do you deal with side effects?

Day 27: How do you respond to the question "How are you?" when you aren't doing well?

Day 28: Are certain times of year harder on your health than others?

Day 29: How do you feel about

Day 30: Post pictures of you during good and bad times with your illnesses. Do you think other people can tell when your health is bad? Does that matter to you?

Spoonie
Spoonie


Day 1: Introduce yourself. What illnesses do you have? How long have you had them?

My name is Amy and I live with DH and our two cats, Niki and Katya. I have multiple chronic illnesses, both physical and mental. I enjoy scrapbooking, collecting postcards, reading, writing, blogging, studying world religions, crocheting (though I'm not very good at it), cross-stitch, and am learning to work with polymer clay. I hope to someday learn Italian. I want to be a Mommy someday, and I think DH would make a great Daddy.

Ehlers-Danlos Syndrome Hypermobility Type (EDS-H or EDS 3)
Age of onset: birth
Age of diagnosis: 29

Postural Orthostatic Tachycardia Syndrome (POTS)
Age of onset: teenager
Age of diagnosis: 30

Partial Complex Epilepsy
Age of onset: unknown, doctors theorize since childhood
Age of diagnosis: 27

Fibromyalgia
Age of onset: childhood
Age of diagnosis: 15

Chronic Myofascial Pain (CMP)
Age of onset: childhood
Age of diagnosis: 29

Polycystic Ovarian Syndrome (PCOS)
Age of onset: puberty
Age of diagnosis: 28

Temporomandibular Joint Dysfunction (TMJ Dysfunction)
Age of onset: childhood
Age of diagnosis: 13

Bipolar type I Rapid Cycling With Psychosis
Age of onset: 10
Age of diagnosis: 19

Migraines
Age of onset: 23
Age of diagnosis: 27

Obsessive Compulsive Disorder (OCD)
Age of onset: 4
Age of diagnosis: 15
Age of remission: 28

Complex-Post-Traumatic Stress Disorder (C-PTSD)
Age of onset: childhood
Age of diagnosis: diagnosis of PTSD, diagnosis of C-PTSD at age 29

Panic Disorder
Age of onset: teenager
Age of diagnosis: 32

Generalized Anxiety Disorder (GAD)
Age of onset: teenager
Age of diagnosis: 25

Social Anxiety Disorder (SAD)
Age of onset: 4
Age of diagnosis: 33

Hashimotos Thyroiditis
Age of onset: 23
Age of diagnosis: 23

Seasonal Affective Disorder (SAD)
Age of onset: 10
Age of diagnosis: 20

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